Shearer Family 2015

Shearer Family 2015

Sunday, January 08, 2012

Wow it's been a long time once again!!

I really need to keep this blog more updated!! I have spent this weekend working on setting up workboxes for my 2 homeschoolers. I will post pictures when I am done. I hope this is the answer to us staying on top of school work and the kids knowing what they should be doing when. I am using file folder boxes and hanging files instead of boxes so it takes up less space and it's portable since we are a family on the go.

A family update- For those that don't know our DD #2 has become a medical mystery to the doctors at this point. A year ago we started seeing specialist at CRS Flagstaff. We saw the Neurologist and he wanted her tested for Muscular Dystrophy so when she had the last surgery on her feet in January 2011 they also did a muscle biopsy to test for MD. That came back clear, she also had a brain MRI and that came back inconclusive. Next step was seeing a Genetic Specialist. So last month we saw Dr Amato at CRS Phoenix and had genetic testing done. We are now waiting for results. So at this point in time she has mild cerebral palsy but we aren't sure why. The doctors really want to know WHY she has all the issues she has and to be honest we would like answers too.

It's been a LONG 10 year road starting with the club feet at birth and weekly cast changes. Then the doctors originally telling me ohhh she's just behind because of everything going on with her feet. To then when FUSD did testing on her to go into K we were told she was mild mentally retarded. Then to be told oh no it's not that she has a severe language disorder both expressive and receptive and she has mild cerebral palsy. To last year being told we think your daughter has Muscular Dystrophy. Now being told yes it's CP but we don't know why.  I have certainly learned to just turn my fears over to God because he's in control anyway.

No comments: